Director, Real World Evidence, Global Rare Diseases - HIDO

Director, Real World Evidence, Global Rare Diseases - HIDOBased in Parma, Italy, Chiesi is an international research-focused biopharmaceutical group with 90 years' experience, operating in 31 countries. More than 8,000 employees across the group are united by a singular purpose: promoting a healthier world for our people, patients, and the planet. This is what drives us as we research, develop, and market innovative drugs across our main therapeutic areas. Discover more here. At Chiesi we are thinking generations ahead, driving sustainable innovation with purpose. This fosters a culture of reliability, transparency, and ethical behavior at every level. As a Benefit Corporation and a certified B Corp, we have embedded sustainability in our bylaws and continuously measure our impact. Diversity, inclusion, and equal opportunity are at the heart of who we are. We believe our differences make us stronger. We are a vibrant ecosystem of passionate, talented individuals united by strong values, each bringing unique perspectives that help us to continuously challenge the status quo for the better. Chiesi Global Rare Diseases is a Chiesi Group's business unit established in February 2020 and focused on research, development and commercialization of treatments and patient support services for rare and ultra-rare disorders, many of whom have limited or no treatments available. This unit is based in Boston, Massachusetts, with a strong synergy with the headquarters in Parma. Rare unit has a focus on research and product development for lysosomal storage diseases, rare hematology, ophthalmology disorders and rare immunodeficiencies. The unit is also a dedicated partner with global leaders in scientific research, patient advocacy and care. This is what you will do: The Director, RWE is responsible for leading and executing the global RWE strategy and vision for the Hematology, Immunology, Dermatology and Ophthalmology (HIDO) Portfolio within GRD, ensuring the strategy, creation and updating of the integrated evidence generation plan (IEGP), in alignment with cross-functional partners to meet research and commercial objectives. This role drives enterprise-level RWE impact, including building strategic data partnerships, advancing innovative methodologies, and influencing cross-functional decision-making. You'll be responsible for: RWE Strategy & Leadership Capability Building & Organizational Leadership External Data & Partnership Strategy Scientific & Technical Leadership Cross-Functional Influence & Integration Evidence Generation Oversight External Scientific Leadership & Visibility Leadership & Matrix Management You will need to have: Advanced degree (PhD, DrPH, MD, PharmD, MSc) in epidemiology, public health, health economics, or related field 8+ years of experience in RWE, HEOR, epidemiology, or observational research in pharma/biotech or related setting Demonstrated success in leading RWE strategy at asset or portfolio level Strong experience in real-world data sources (claims, EHR, registries, etc.)Proven track record of building partnerships and influencing senior stakeholders Deep expertise in epidemiology and RWE methodologies Ability to translate evidence into business and clinical impact Ability to shape data strategy and infrastructure decisions Strong governance and oversight of complex, multi-country studies and programs Ability to manage competing priorities and large-scale initiatives We would prefer for you to have: Rare disease experience strongly preferred; experience in hematology, immunology, dermatology, ophthalmology, or specialty medicines highly desirable.